Quebec Alopecia Areata Foundation
http://qaaf.ca/
QAAF is a supportive community for alopecians and their loved ones. Provides emotional support and educational resources. Find the location, and a meeting schedule. - [Read more]
http://qaaf.ca/
QAAF is a supportive community for alopecians and their loved ones. Provides emotional support and educational resources. Find the location, and a meeting schedule. - [Read more]
OHSU Acoustic Neuroma Treatment Team
http://www.ohsu.edu/ent/ear/acoustic.html
Background information and details of treatment options provided by the Oregon Health and Science University. Also features links to related resources. - [Read more]
http://www.ohsu.edu/ent/ear/acoustic.html
Background information and details of treatment options provided by the Oregon Health and Science University. Also features links to related resources. - [Read more]
IMMD Institute of Medical Molecular Diagnostics Ltd.
http://www.immd.de/
The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood. - [Read more]
http://www.immd.de/
The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood. - [Read more]
A3243G
http://www.a3243g.com/
Explains a gene defect of mitochondrial DNA which causes several diseases, including maternally inherited diabetes with deafness. Features a newsletter, patient forum and definitions. - [Read more]
http://www.a3243g.com/
Explains a gene defect of mitochondrial DNA which causes several diseases, including maternally inherited diabetes with deafness. Features a newsletter, patient forum and definitions. - [Read more]
Your Genes, Your Health
http://www.ygyh.org/
Your Genes, Your Health is the DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed. - [Read more]
http://www.ygyh.org/
Your Genes, Your Health is the DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed. - [Read more]
Gene Clinics
http://www.geneclinics.org/
Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. - [Read more]
http://www.geneclinics.org/
Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. - [Read more]
Genetic and Rare Conditions
http://www.kumc.edu/gec/support/
Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z. - [Read more]
http://www.kumc.edu/gec/support/
Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z. - [Read more]
The Center For Jewish Genetics Disorders
http://www.jewishgeneticscenter.org/
A critical effort to provide public and professional education for many of the identified Jewish genetic disorders. Find info on screening and counseling, advocacy, events and community resources. - [Read more]
http://www.jewishgeneticscenter.org/
A critical effort to provide public and professional education for many of the identified Jewish genetic disorders. Find info on screening and counseling, advocacy, events and community resources. - [Read more]
Primary Ciliary Dyskinesia
http://www.p-c-d.org/en/
Information on a rare congenital disease. Within this brochure you will find some experiences of PCD patients and an answer to frequently asked questions. If, after reading this brochure, you still have questions then you should not hesitate to contact your doctor. - [Read more]
http://www.p-c-d.org/en/
Information on a rare congenital disease. Within this brochure you will find some experiences of PCD patients and an answer to frequently asked questions. If, after reading this brochure, you still have questions then you should not hesitate to contact your doctor. - [Read more]
Genetic Disorders: The Links to Diet
http://www.ctds.info/genetic_disorders.html
Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. - [Read more]
http://www.ctds.info/genetic_disorders.html
Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. - [Read more]
XLH Network
http://www.xlhnetwork.org/
Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets. - [Read more]
http://www.xlhnetwork.org/
Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets. - [Read more]
AMS Support Network (AMSSN)
http://www.amssupportnetwork.com/
Support Network (AMSSN) is an online community providing information and support for families affected by the rare condition Ablepharon Macrostomia Syndrome - [Read more]
http://www.amssupportnetwork.com/
Support Network (AMSSN) is an online community providing information and support for families affected by the rare condition Ablepharon Macrostomia Syndrome - [Read more]
Acoustic Neuroma Association
http://www.anausa.org/
Acoustic Neuroma Association is a nonprofit organization providing information and support to patients. Providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves. - [Read more]
http://www.anausa.org/
Acoustic Neuroma Association is a nonprofit organization providing information and support to patients. Providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves. - [Read more]
The Department of Neurological Surgery: University of Pittsburgh.
http://www.acousticneuroma.neurosurgery.pitt.edu/
Acoustic neuromas (vestibular schwannomas) treatment options discussed including surgery, gamma knife radiosurgery and fractionated radiotherapy. Statistics, links and reference list provided. - [Read more]
http://www.acousticneuroma.neurosurgery.pitt.edu/
Acoustic neuromas (vestibular schwannomas) treatment options discussed including surgery, gamma knife radiosurgery and fractionated radiotherapy. Statistics, links and reference list provided. - [Read more]
Acoustic Neuroma Archive
http://www.anarchive.org/
Informational site by and for acoustic neuroma patients with advice, news, stories, directories and links. Dedicated to providing you with information, advice, and stories to help make informed decisions regarding your treatment options and other Acoustic Neuroma management issues.
- [Read more]
http://www.anarchive.org/
Informational site by and for acoustic neuroma patients with advice, news, stories, directories and links. Dedicated to providing you with information, advice, and stories to help make informed decisions regarding your treatment options and other Acoustic Neuroma management issues.
- [Read more]
Acoustic Neuroma Association of Canada
http://www.anac.ca/
Information including treatment options and post - operative issues. Membership details and message board. The Acoustic Neuroma Association of Canada is a patient-headed, peer support group. It is an incorporated, registered, non-profit organization recognized as such by Canada Revenue Agency. - [Read more]
http://www.anac.ca/
Information including treatment options and post - operative issues. Membership details and message board. The Acoustic Neuroma Association of Canada is a patient-headed, peer support group. It is an incorporated, registered, non-profit organization recognized as such by Canada Revenue Agency. - [Read more]
Acoustic Neuroma
http://www.neurosurgery.ucsd.edu/cnd/acousticneuroma
UCSD Division of Neurosurgeryis a non profit-organization. An introduction to the condition with treatment options offered by the University of California, San Diego Division of Neurosurgery.
- [Read more]
http://www.neurosurgery.ucsd.edu/cnd/acousticneuroma
UCSD Division of Neurosurgeryis a non profit-organization. An introduction to the condition with treatment options offered by the University of California, San Diego Division of Neurosurgery.
- [Read more]
Acoustic Neuroma Association NSW Inc.
http://www.acousticneuroma.com.au/
Australian organization dedicated to providing information and support for people affected by the condition. Features information on treatment, meetings, contacts and links. - [Read more]
http://www.acousticneuroma.com.au/
Australian organization dedicated to providing information and support for people affected by the condition. Features information on treatment, meetings, contacts and links. - [Read more]
What Is An Acoustic Neuroma
http://www.hopkinsmedicine.org/radiosurgery/disorders/acoustic.cfm
Patient-oriented information on this disorder, including tinnitus, speech discrimination and facial nerve preservation. Treatments include surgery, radiosurgery and sometimes observation. - [Read more]
http://www.hopkinsmedicine.org/radiosurgery/disorders/acoustic.cfm
Patient-oriented information on this disorder, including tinnitus, speech discrimination and facial nerve preservation. Treatments include surgery, radiosurgery and sometimes observation. - [Read more]
Acoustic Neuroma Journey
http://anworld.com/
Provides information for acoustic neuroma patients to decide which treatment option is the best; wait and watch, surgery, or radiation. Includes links, staging, diagram, mailing list, and surveys. - [Read more]
http://anworld.com/
Provides information for acoustic neuroma patients to decide which treatment option is the best; wait and watch, surgery, or radiation. Includes links, staging, diagram, mailing list, and surveys. - [Read more]
Acoustic Neuroma - The Basic Facts
http://www.med.umn.edu/otol/library/aneuroma/
Find information on the cause, symptoms, diagnosis and treatment of the condition. Hosted by the University of Minnesota, Department of Otolaryngology, Head and Neck Surgery. - [Read more]
http://www.med.umn.edu/otol/library/aneuroma/
Find information on the cause, symptoms, diagnosis and treatment of the condition. Hosted by the University of Minnesota, Department of Otolaryngology, Head and Neck Surgery. - [Read more]
Bodies Like Ours
http://www.bodieslikeours.org/
Working towards ending non-consensual genital surgeries on infants and children. Provides support and information for people born with atypical genitals. - [Read more]
http://www.bodieslikeours.org/
Working towards ending non-consensual genital surgeries on infants and children. Provides support and information for people born with atypical genitals. - [Read more]
Congenital Adrenal Hyperplasia.org
http://www.congenitaladrenalhyperplasia.org/
An education and support network for people and families with Congenital Adrenal Hyperplasia. Includes important medical links, FAQ, message board and archives. - [Read more]
http://www.congenitaladrenalhyperplasia.org/
An education and support network for people and families with Congenital Adrenal Hyperplasia. Includes important medical links, FAQ, message board and archives. - [Read more]
CARES Foundation
http://caresfoundation.org/productcart/pc/index.html
Supporting individuals and families affected by all forms of congenital adrenal hyperplasia. Newsletters, conferences, events, research, and treatment. - [Read more]
http://caresfoundation.org/productcart/pc/index.html
Supporting individuals and families affected by all forms of congenital adrenal hyperplasia. Newsletters, conferences, events, research, and treatment. - [Read more]
X-linked Adrenoleukodystrophy Mutations
http://www.x-ald.nl/
This database has been initiated to collect data on mutations found in the gene (ABCD1) responsible for X-linked adrenoleukodystrophy. - [Read more]
http://www.x-ald.nl/
This database has been initiated to collect data on mutations found in the gene (ABCD1) responsible for X-linked adrenoleukodystrophy. - [Read more]
Adrenoleukodystrophy (ALD) Foundation
http://www.aldfoundation.org/
A non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease. - [Read more]
http://www.aldfoundation.org/
A non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease. - [Read more]
My Son Joe
http://www.mysonjoe.org.uk/
Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder. This organization is dedicated to the author's little boy Joseph, who sadly passed away in August 2003 from Adrenoleukodystrophy, ALD.
- [Read more]
http://www.mysonjoe.org.uk/
Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder. This organization is dedicated to the author's little boy Joseph, who sadly passed away in August 2003 from Adrenoleukodystrophy, ALD.
- [Read more]
Aicardi Syndrome Foundation
http://www.aicardisyndrome.org/
This site can provide information and comfort to families and friends of children diagnosed with Aicardi Syndrome. Links to other website covering medical and developmental issues and general special needs parenting support. - [Read more]
http://www.aicardisyndrome.org/
This site can provide information and comfort to families and friends of children diagnosed with Aicardi Syndrome. Links to other website covering medical and developmental issues and general special needs parenting support. - [Read more]
Alagille Syndrome Alliance
http://www.alagille.org/
Worldwide support network for people who care about people with alagille syndrome. The purpose of the Virtual Walk is to raise funds to support Alagille Alliance programs and publications. It is also a great way to increase awareness of AGS in your community! - [Read more]
http://www.alagille.org/
Worldwide support network for people who care about people with alagille syndrome. The purpose of the Virtual Walk is to raise funds to support Alagille Alliance programs and publications. It is also a great way to increase awareness of AGS in your community! - [Read more]
Children's Liver Alliance
http://kinsey.id.au/liverkids/
A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome. This site was originally called BALT (Biliary Atresia and Liver Transplant Network), the group then combined with the US group and changed names to the Children's Liver Alliance. - [Read more]
http://kinsey.id.au/liverkids/
A description, the diagnosis, symptoms, treatment and complications of Alagille syndrome. This site was originally called BALT (Biliary Atresia and Liver Transplant Network), the group then combined with the US group and changed names to the Children's Liver Alliance. - [Read more]
National Organization for Albinism and Hypopigmentation
http://www.albinism.org/
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. - [Read more]
http://www.albinism.org/
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. - [Read more]
The Albinism Fellowship UK
http://www.albinism.org.uk/
The The Albinism Fellowship UK is a purely voluntary run positive, sociable organisation that provides information, advice & support for people with an appropriate interest in albinism. - [Read more]
http://www.albinism.org.uk/
The The Albinism Fellowship UK is a purely voluntary run positive, sociable organisation that provides information, advice & support for people with an appropriate interest in albinism. - [Read more]
PanAmerican Society for Pigment Cell Research
http://paspcr.med.umn.edu/
A scientific society devoted to those of us interested in various aspects of pigment cells. Society is a very interactive one, meeting on an annual basis, and is composed of clinicians, developmental biologists, biochemists, immunologists, cell biologists, molecular biologists, chemists and physicists, among other disciplines. - [Read more]
http://paspcr.med.umn.edu/
A scientific society devoted to those of us interested in various aspects of pigment cells. Society is a very interactive one, meeting on an annual basis, and is composed of clinicians, developmental biologists, biochemists, immunologists, cell biologists, molecular biologists, chemists and physicists, among other disciplines. - [Read more]
Hermansky-Pudlak Syndrome Network Inc
http://www.hpsnetwork.org
This site is having information and resources about the syndrome and albinism. The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorder such as Chediak Higashi Syndrome. - [Read more]
http://www.hpsnetwork.org
This site is having information and resources about the syndrome and albinism. The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorder such as Chediak Higashi Syndrome. - [Read more]
Albinism in Popular Culture
http://www.lunaeterna.net/popcult/
Explore the mythology of albinism. The purpose of this site is to explore the mythology of albinism, to take an in-depth look at the various ways in which this unique trait has been perceived and presented. - [Read more]
http://www.lunaeterna.net/popcult/
Explore the mythology of albinism. The purpose of this site is to explore the mythology of albinism, to take an in-depth look at the various ways in which this unique trait has been perceived and presented. - [Read more]
International Albinism Center
http://albinism.med.umn.edu/
At the University of Minnesota a team of dedicated research professionals interested in understanding the basis of albinism in humans. Facts about this disorder as well as glossary of terms provided. - [Read more]
http://albinism.med.umn.edu/
At the University of Minnesota a team of dedicated research professionals interested in understanding the basis of albinism in humans. Facts about this disorder as well as glossary of terms provided. - [Read more]
Chromosome 9P
http://www.9pminus.org/
This is a Non-profit organization working to inform and educate others about this syndrome, also known as Alfi's Syndrome. Includes news, events, and links to additional information. - [Read more]
http://www.9pminus.org/
This is a Non-profit organization working to inform and educate others about this syndrome, also known as Alfi's Syndrome. Includes news, events, and links to additional information. - [Read more]
The Alkaptonuria Society
http://www.alkaptonuria.info/
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources. The Alkaptonuria Information Centre exhibited at the British Society for Rheumatology Annual Conference in Liverpool to raise awareness about Alkaptonuria amongst Rheumatology professionals and to possibly identify new patients - [Read more]
http://www.alkaptonuria.info/
An information and support network for those people diagnosed with Alkaptonuria. Includes discussions, articles and related resources. The Alkaptonuria Information Centre exhibited at the British Society for Rheumatology Annual Conference in Liverpool to raise awareness about Alkaptonuria amongst Rheumatology professionals and to possibly identify new patients - [Read more]
eMedicine Online Text: Alkaptonuria
http://www.emedicine.com/ped/topic64.htm
An in depth look at this disorder written by Karl S Roth, MD. From a description to treatment all aspects of this disease are discussed. The authors, editors, and publisher of this journal have used their best efforts to provide information that is up-to-date and accurate and is generally accepted within medical standards at the time of publication.
- [Read more]
http://www.emedicine.com/ped/topic64.htm
An in depth look at this disorder written by Karl S Roth, MD. From a description to treatment all aspects of this disease are discussed. The authors, editors, and publisher of this journal have used their best efforts to provide information that is up-to-date and accurate and is generally accepted within medical standards at the time of publication.
- [Read more]
MedicineNet.com : Alkaptonuria
http://www.medicinenet.com/alkaptonuria/article.htm
This is an article about this disease beginning with an explanation as to what it is, followed by how it is inherited, how it affects the joints, symptoms, diagnosis and treatment. - [Read more]
http://www.medicinenet.com/alkaptonuria/article.htm
This is an article about this disease beginning with an explanation as to what it is, followed by how it is inherited, how it affects the joints, symptoms, diagnosis and treatment. - [Read more]
Her Alopecia
http://www.heralopecia.com/
Non-profit community resource for female hair loss sufferers. Created by women, for women®. A free, non-profit community resource for female hair loss sufferers. The only site of its kind, providing an interative community and source of support dedicated entirely to women's hair loss. - [Read more]
http://www.heralopecia.com/
Non-profit community resource for female hair loss sufferers. Created by women, for women®. A free, non-profit community resource for female hair loss sufferers. The only site of its kind, providing an interative community and source of support dedicated entirely to women's hair loss. - [Read more]
Alopecia Information And Resources
http://www.follicle.com/
Summaries on different hair loss conditions plus dermatological and alternative treatments. Includes abstracts of relevant articles from medical journals. - [Read more]
http://www.follicle.com/
Summaries on different hair loss conditions plus dermatological and alternative treatments. Includes abstracts of relevant articles from medical journals. - [Read more]
Fight Alopecia
http://www.fightalopecia.com/
The Fighting Alopecia Areata Club aims to raise money and inform the public about this disease that results in the loss of hair on the scalp and elsewhere. Find projects, a forum and a photo gallery. - [Read more]
http://www.fightalopecia.com/
The Fighting Alopecia Areata Club aims to raise money and inform the public about this disease that results in the loss of hair on the scalp and elsewhere. Find projects, a forum and a photo gallery. - [Read more]
Alopecia Online
http://www.alopeciaonline.org.uk/
Alopecia UK provides information, advice and support for people with Alopecia Areata, Alopecia Totalis and Alopecia Universalis. Alopecia UK is run by a management committee who are responsible for the day-to-day operation and development of the charity. - [Read more]
http://www.alopeciaonline.org.uk/
Alopecia UK provides information, advice and support for people with Alopecia Areata, Alopecia Totalis and Alopecia Universalis. Alopecia UK is run by a management committee who are responsible for the day-to-day operation and development of the charity. - [Read more]
National Alopecia Areata Foundation
http://www.alopeciaareata.com/
A non profit organization dedicated to providing information about alopecia areata. With support groups in the USA and contacts with similar support groups worldwide. - [Read more]
http://www.alopeciaareata.com/
A non profit organization dedicated to providing information about alopecia areata. With support groups in the USA and contacts with similar support groups worldwide. - [Read more]
Alpha-1 Antitrypsin Deficiency Association
http://www.alpha1.org/
Alpha-1 Antitrypsin Deficiency Association is a Non-profit organization offering information and support to patients, caregivers, and families effected by this disease. - [Read more]
http://www.alpha1.org/
Alpha-1 Antitrypsin Deficiency Association is a Non-profit organization offering information and support to patients, caregivers, and families effected by this disease. - [Read more]
Spiderspun
http://www.spiderspun.net/
A haven for those affected by Alpha-1 Antirypsin Deficiency. Facts, chat rooms, assistance programs, and reference material. Mission is to raise Alpha-1 Awareness through the patient's perspective. - [Read more]
http://www.spiderspun.net/
A haven for those affected by Alpha-1 Antirypsin Deficiency. Facts, chat rooms, assistance programs, and reference material. Mission is to raise Alpha-1 Awareness through the patient's perspective. - [Read more]
Alpha 1 Awareness Alliance
http://www.kama.u-net.com/
A site where members of the medical professions and the public can find information about alpha 1-antitrypsin- deficiency. Includes news, reports and links. - [Read more]
http://www.kama.u-net.com/
A site where members of the medical professions and the public can find information about alpha 1-antitrypsin- deficiency. Includes news, reports and links. - [Read more]
Alpha-1 Advocacy Alliance
http://www.alpha1advocacy.org/index.html
Alpha-1 Advocacy Alliance offers information about this disorder, resources for medical support, advocacy, public policy, health tips, and free membership. - [Read more]
http://www.alpha1advocacy.org/index.html
Alpha-1 Advocacy Alliance offers information about this disorder, resources for medical support, advocacy, public policy, health tips, and free membership. - [Read more]
Alström Syndrome
http://www.jax.org/alstrom
Clinical features, literature and research. Includes guidelines for health care professionals. The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician. - [Read more]
http://www.jax.org/alstrom
Clinical features, literature and research. Includes guidelines for health care professionals. The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician. - [Read more]